We're asking the World Health Organization to take action on Trigeminal Neuralgia (TN) (aka "Suicide Disease") & Facial Pain Disorders! By adding Trigeminal Neuralgia (TN) to their "Health Topic" list. By WHO adding TN to their list of illnesses which can expand awareness, access to resources and create opportunities for funding & research.
Toni has led the fight for WHO to recognize trigeminal neuralgia, as an illness so that it receives more awareness and funding. She manages a Facebook page to support TN sufferers ,successfully launched an International Trigeminal Neuralgia Day and tirelessly advocates for TN sufferers, all whilst suffering from TN herself. She is a force, an inspiration and a hero to the TN community. — Gilly
Toni has worked tirelessly 24x7 through her own pain to raise awareness of this relentless, painful condition (Trigeminal Neuralgia). Toni's efforts are so very important and she's been able to rally support from fellow sufferer's, the medical community and the general public who would otherwise have no clue what "TN" is. Tony is an inspiration to those of us afflicted with this condition and I feel confident that thanks to Toni and others like her, I could very well see a cure for TN in my lifetime. Thank you Toni! You're my hero! — Barb