Patient Leader Hero Nominees

Tiffany Kairos

Diagnosed with epilepsy, as an advocate for the cause, I find it a mission and passion to raise awareness,…

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Ronny Allan

Ronny Allan was diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010 after presenting…

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The Frey Life

We are daily vloggers on YouTube showing the ups and downs of everyday life with Cystic Fibrosis! Encouraging…

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MarlaJan- Luck Fupus

I drew the short straw in the family gene pool- but I ain't mad about it. I was born w/ a complex heart…

Learn more about MarlaJan- Luck Fupus


Bob DeMarco

Bob DeMarco is the Founder of the Alzheimer's Reading Room (ARR). AlzheimersReadingRoom.com The…

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Global Hydranencephaly Foundation

The Global Hydranencephaly Foundation is a family driven nonprofit organization dedicated to providing…

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Barby Ingle

Barby is an advocate for PTs w 150+ Chronic & Rare Diseases | Pres. International Pain Foundation (vol…

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Jenni Grover

Jenni Grover is Founder of ChronicBabe.com, where she draws on her experience with fibromyalgia and other…

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Julie Flygare

Julie Flygare, JD, is a leading narcolepsy spokesperson, award-winning author, and blogger diagnosed…

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VeganOstomy

My name is Eric, and I have a permanent ileostomy as a result of Crohn's Disease - and I eat plants …

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Sara

The name Sara is pretty common so ask for the one without a rectum and you'll find me! ;-p I have Crohn…

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Janie A. Bowthorpe, M.Ed.

Hello to all my thyroid friends worldwide! Who would've guessed that I'd be where I am today after 16…

Learn more about Janie A. Bowthorpe, M.Ed.


@AlishaMBridges

I've dealt with severe plaque psoriasis for over 20 years, an autoimmune disease that affects the skin…

Learn more about @AlishaMBridges


Gustavo San Martin

Formado em Administração de empresas com especialização em criatividade e empreendedorismo. Já teve…

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City Girl Flare

My name is Lori-Ann. I am married, work in Manhattan, and live nearby in Jersey City. I was diagnosed…

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Summer Scirocco

In 2013, I was diagnosed with psoriasis and psoriatic arthritis. Since then I have joined a number of…

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Rare Candace

I am a rare disease patient who began advocating for others after researching and using an off-label…

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Melissa Adams VanHouten

After being diagnosed with gastroparesis in February of 2014, I became a passionate advocate for those…

Learn more about Melissa Adams VanHouten


Puja Rios

Puja Rios is Vice President of Sales at a top-ranked human capital software organization and the founder…

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Christina Doherty

Hello everyone! I am a 22 year old vlogger and artist fighting multiple chronic illnesses. When I first…

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Kristal

As an advocate chronicling my daily struggles with Fibromyalgia (FM), my goal is to promote Fibromyalgia…

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TheTubeFedWife

Chanel White, aka The Tube Fed Wife, is a mid twenties blogger using social media to educate others.…

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Bill Sydnor

I was diagnosed with MSA in July 2010 and began blogging about my experiences on my Facebook page, "Living…

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Tiffany Early

I blog to raise awareness of chronic and invisible disorders. I seek to find the humor in the frustrations…

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International Hyperhidrosis Society

Hyperhidrosis (extreme, uncontrollable sweating affecting 4.8% of people) is often misunderstood, misrepresented…

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Chronic Eileen

Eileen Davidson is an ambassador for The Arthritis Society, Patient Advisory Board Member for Arthritis…

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Terry Arnold

Terry Arnold was diagnosed with Triple Negative Inflammatory Breast Cancer, (TN IBC) in her right breast…

Learn more about Terry Arnold


Effie Koliopoulos

Hi! I’m a writer, blogger, YouTuber and awareness-raising advocate. I was diagnosed with juvenile rheumatoid…

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Natalie Y. Beavers

I've survived epilepsy for over 35 years now and all I want to do is support and advocate for the many…

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Mickey

My name is Mickey and I'm 17 years old. I have Ehlers Danlos Syndrome which is a connective tissue disorder.…

Learn more about Mickey