Lifetime Achievement Nominees

The directory does not include all nominees. Only nominees who have created a directory profile are shown. If you have been nominated for an award and have not received an email to be included in the directory please email

The Frey Life

We are daily vloggers on YouTube showing the ups and downs of everyday life with Cystic Fibrosis! Encouraging…

Learn more about The Frey Life


Simon Stones

I'm Simon - a 24 year old living with arthritis, Crohn's disease and fibromyalgia. My own experiences…

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Pam Bower

Since 1994: Advocate for Multiple System Atrophy & Ataxia 1994-2000: Co-Founder International Network…

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Barby Ingle

Barby is an advocate for PTs w 150+ Chronic & Rare Diseases | Pres. International Pain Foundation (vol…

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Jenni Grover

Jenni Grover is Founder/Editrix of, where she draws on her experience with fibromyalgia…

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Amy Medling, CHC, is the founder of PCOS, an online resource dedicated to helping women understand…

Learn more about Amy


Rick Green is an award-winning producer, director, writer and comedic performer who has made hundreds…

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Sharon Coyle-Saeed

My name is Sharon and I am just so honored to be nominated for this award! I am the CEO and founder of…

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Tom Kindlon

I have Myalgic Encephalomyelitis (M.E.)* since February 1989, when I was just 16. I wasn't diagnosed…

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David Harlow

I am a health care attorney and consultant. I am a cancer survivor and have had close family members…

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Khafre Kujichagulia Abif

Khafre Kujichagulia Abif, MLS is an Atlanta-based HIV/AIDS, Bisexual, and Social Justice activist, writer,…

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Ashley has served PCOS and chronic illness communities for over 18 years. She actively participates with…

Learn more about @pcosgurl


Bipolar Hot Mess

Bipolar II, chronic pain, and eating disorders are my main focus.I first tried blogging in 2011 with…

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I have had diabetes for 43 years and RA for 17. Recently I was diagnosed with Ankylosing Spondylitis,…

Learn more about Lawrence


Cathy Kramer

Rheumatoid arthritis is a part of who I am. Understanding that, I share my journey of RA and how it relates…

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Frank Rivera

I am a patient advocate as well as a patient for Sarcoidosis. I was diagnosed in 2011, but was misdiagnosed…

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Trevis L Gleason

Trevis L Gleason's Life With MS Blog is one of the oldest and most respected patient blogs on the topic…

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Ashley D Loomis

I have had crohns since 4+1/2 I'm 65 now.I have been active for many years helping others. I have 3…

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Al Levin

I have a blog ( where I post on topics of mental health, depression, men & depression,…

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Terri Coutee

I am a two-time breast cancer survivor who chose to have breast reconstruction after a double mastectomy.…

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Stacey Chillemi

I am on a mission to transform the health of millions worldwide. I help people each day through my writings…

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I feel i am very blessed in that i am able to give back to EVERY COPD patient who wants to learn and…

Learn more about Jimmy


Barbara Jacoby

I am a 2x breast cancer survivor who was given a course of treatment by my oncologist that was determined…

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Natalie Y. Beavers

I've survived epilepsy for over 35 years now and all I want to do is support and advocate for the many…

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John M. Grohol

I've been advocating and writing about mental health issues online since 1992, starting with the indexing…

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John-Manuel Andriote

I began reporting on HIV-AIDS as a journalist in 1986. I had lost two friends to AIDS by then and hysteria…

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Howard Chang

I've lived with severe skin conditions, mainly psoriasis and eczema, since childhood. I advocate for…

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Tom Muyunga-Mukasa

As an HIV Prevention and Care Activist my effort is around understanding literature about HIV, its prevention,…

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Ken Taylor

I am a caregiver, author, and TV personality raising awareness for chronic pain issues and challenges.…

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Hi, I am the founder of Purple Day for Epilepsy. Purple Day is celebrated every year on March 26th…

Learn more about CassidyMeganPD