Healthcare Collaborator: Patient Nominees

Effie Koliopoulos

Hi! I’m a writer, blogger, YouTuber and awareness-raising advocate. I was diagnosed with juvenile rheumatoid…

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Barby Ingle

Barby is an advocate for PTs w 150+ Chronic & Rare Diseases | Pres. International Pain Foundation (vol…

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Jenni Grover

Jenni Grover is Founder of ChronicBabe.com, where she draws on her experience with fibromyalgia and other…

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Sara

The name Sara is pretty common so ask for the one without a rectum and you'll find me! ;-p I have Crohn…

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@LAlupusLady

Diagnosed with Lupus over 36 years ago, I openly share my healthcare story, resources and support online.…

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GetYourBellyOut

Founded in March 2014, the #GetYourBellyOut campaign aims to support those affected by inflammatory bowel…

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Don Stranathan

I was diagonosed with Stage 4 Lung Cancer in June of 2009. Since then I have done radiation, chemotherapy,…

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Danny van Leeuwen

An action catalyst empowering people traveling together toward best health. Wears many hats in healthcare…

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International Hyperhidrosis Society

Hyperhidrosis (extreme, uncontrollable sweating affecting 4.8% of people) is often misunderstood, misrepresented…

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Chronic Eileen

Eileen Davidson is an ambassador for The Arthritis Society, Patient Advisory Board Member for Arthritis…

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Lisa Rosenthal

Little did I know, 31 years ago, when I first started trying to become pregnant, that infertility and…

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Julie Eller

I'm a patient gone professional. Every day when I come to work at the Arthritis Foundation, I get to…

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Mentally Aware Nigeria Initiative (MANI)

MANI is a registered non-profit organisation (CAC/IT/83725), focused on breaking the silence and alleviating…

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Charlotta Norgaard

As a lupus patient, I know what it is like to go through chronic pain and constant worry. I combined…

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Sita Gaia

Hi! I am Sita and I have been an advocate for Epilepsy ever since 2012. I felt very lonely when my seizures…

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Megan Davis

I was diagnosed with Epilepsy my first year of college. I woke up one morning soaked in my own urine…

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Allison Cronkwright

I was diagnosed with Complex Regional Pain Syndrome, a debilitating rare and incurable disease that affects…

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Stoma in a teacup

Hi I'm Shell aka Stoma in a teacup. I'm 34 & suffered active UC for 10 years. I had my colon & rectum…

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Kendra Neilsen Myles, CHES, BCPA, RYT 200

Kendra is a Certified Health Education Specialist (CHES), a Board Certified Patient Advocate (BCPA) …

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Rocking2stomas

Hi, I'm Rachel and I am 31 years old and have been ill for 10 years with a rare condition called Pure…

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My Life As A Puddle / Maria Thomas

Hyperhidrosis (excessive sweating) affects five percent of the global population, but I bet this statistic…

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Arthritis Broadcast Network

Arthritis Broadcast Network (ABN) – powered by Arthritis Consumer Experts – is an online platform created…

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Daniel G Garza

HIV/AIDS Advocate, with a focus on education in prevention, since 2001, after being diagnosed in September…

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Amanda Marie

I understand the challenges that Dysautonomia and Ehlers-Danlos Syndrome can bring from the perspective…

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Terri Coutee

I am a two-time breast cancer survivor who chose to have breast reconstruction after a double mastectomy.…

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Christine Von Raesfeld

I’m an advocate for lupus and other conditions, I‘m involved with a local Nonprofit and have met with…

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Michele Tschirhart

In February, of 2011, my life hit a speed bump; the bump derailed my course, and set me on a new path.…

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Sarah Roberts

I'm a 24 year old woman from BC, Canada with Classical Ehlers-Danlos Syndrome, POTS, Chronic Fatigue…

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Jan Groh Oh TWIST author

I'm helping to shed light on a "twisted" condition involving hypermobility that isn't rare, just rarely…

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Cynthia Brown

I am an Author/Freelance Writer/Public Speaker/National Patient Advocate. As a woman living with heart…

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