I’ve recently been diagnosed with chronic fatigue syndrome (also known as Myalgic Encephalomyelitis or M.E.) / chronic pain (which several doctors have suggested may be Fibromyalgia) and pelvic congestion syndrome due to varicose veins on my uterus. As a result of these conditions I’m constantly in pain and have very little energy. This has resulted in me being unable to work for the last 6 months (in a job I love doing combining community engagement and sustainability) and being practically housebound most of the time due to symptoms. Unfortunately none of the conditions I’ve been diagnosed with have any straightforward cures, so I’m now on a journey of discovering who I am with these conditions. This will mean experimenting to discover ways of reducing the symptoms and engage in activities I love without making them worse. I am hoping that along this journey I will not only find ways to engage in the activities I already know I love but find other ways to express myself creatively that may lead to a fulfilling life living with these condition. I love cooking, yoga and walking when I have the energy. Being invisible illnesses I've come to realise that those who suffer from these conditions usually do so alone, as the people around them don't really understand what is going on. I'm helping to spread the word about ME, Fibromyalgia and Pelvic Congestion Syndrome through blogging about my own journey at mychroniclifejourney.wordpress.com and sharing relevant articles and quotes through Twitter (@ChronicMeg) and Facebook (facebook.com/ChronicMeg).
I’m a Patient Leader