I am what I call a professional patient, and part time blogger/patient advocate. I was diagnosed at the age of 18 with a very rare blood cancer called Essential Thrombocytosis. After a period of time spent with my head buried in the sand, I decided I needed to be a more organized and proactive patient. Ever since then I have been active on message boards, and tried to attend as many patient meetings as I could. In order to reach my fellow patients and their caregiveres more easily, I created my online Advocate persona, LinaMPN. I write at linampn.com, and also guest blog for mpnrf.blogspot.com Always remember, you are your own best advocate. if you do not take care of yourself, who will?
I’m a Patient Leader