The Malleable Mom

Patient Leader

I spent the first 40 years of my life not knowing that I had a genetic illness. But I am who I am, because of exactly how I was raised, missed diagnosis or not. And I love myself. My success has come from focusing more on lessons learned than frustrations. As a parent, I will help my kids face obstacles, at times I will BE the obstacle: either way they will learn. My physical health may be a product of years of ignorance and damage, but my mental health is strong because I believed in myself and my inner voice, even when all of the people and evidence surrounding me said otherwise. I never lost faith or hope that I would find my answers and my path to success.

Location

Annapolis, MD

Nominations

Hilarious Health Activist Health Activist Hero Hilarious Patient Leader

Winner

Rookie of the Year

Ashley is an incredibly honest, forthright, and talented writer, who has the amazing ability to find humor in the worst of situations. She has brought new light to EDS and connective tissue disorders, a patient population that is often overlooked and treated incorrectly. Without a doubt, she has already helped an enormous amount of people.  — Jennifer

I have a funny and informative place for all people living with chronic illness. The problems are different, and yet the same. I fell through the diagnostic cracks for over 30 years, and now have two children with EDS. I don't want what happened to me to be anyone elses fate! Information is power and laughter is healing. Together, we are stronger.  — Ashley

Ashley is one of the strongest women I know with a big heart, a generous spirit and the ability to make me think, laugh, cry and want to spread the word on migraines and Ehlers-Danlos Syndrome. She most definitely deserves this award, as she is a champion of her cause, and a beautiful person, both inside and out.  — Teri

Ashley is an inspiration. She has a true passion for bringing awareness to invisible illness and support for the families that are living with it. Ashley has a gift for opening up discussion, supplying information, and adding just the right amount of humor. She's an incredibly genuine person who is truly impacting lives.  — Jenn

She is making a positive difference for those suffering from chronic and invisible illnesses. Her sense of humor and authenticity are inspiring!  — Erica

Dealing with full body pain 24/7 can get really REALLY depressing. The Malleable Mom is able to make me snicker, laugh, AND teach me so much about Ehlers Danlos Syndrome. As soon as I stumbled upon it, I knew this blog was exactly what the doctor ordered. Anyone who has the tagline "a dash of wisdom with a splash of vodka" gets a thumbs up from me!  — Cristiana

The Malleable Mom

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