Rare Disease United

Patient Leader

The Rare Disease United Foundation is the nation’s leading rare disease advocacy organization. RDUF works on the challenges facing rare disease patients both locally and nationally. In five years, RDUF has gone from the first state-based, non-disease specific non-profit to the voice of the 60 million people in the United States suffering from the physical, emotional and financial stress of living with a rare disease. RDUF programs target specific issues and approach them with the wisdom, knowledge and passion that comes with living rare.

Past Awards Participation

Third Annual Health Activist Awards


Advocating for Another

Fourth Annual Health Activist Awards


Health Activist Hero

Sixth Annual WEGO Health Awards


Patient Leader Hero
Rare Disease United

You Might Also Like

Michael Frolichstein

Best in Show: Podcast Nominee

Lady Of Lyme

Best Kept Secret Nominee

Health Activist Hero Nominee

Modern Day MS

Best in Show: Blog Nominee

Matt G

Best in Show: Blog Nominee

Add Your Nomination