Damsel in a Dress

Patient Leader

I am a 28 year old who is affected by multiple chronic illnesses (lupus, gastroparesis, asthma and now a working diagnosis of ehlers-danlos syndrome). I have spent many years in the diagnosis process, receiving lots of misdiagnoses, so my blog not only focuses on having these diagnosed illnesses but also what it's like to be sick and not really know why. When I first knew something was wrong and turned to the internet to find a community of support I felt a little left out because I wasn't sure exactly where to turn. So I created my own blog in the hope of growing the community for those in the scary transitional period before diagnosis. And I do it all with a funny twist!


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Damsel in a Dress

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