IlanaJacqueline

Patient Leader

Let’s Feel Better was created to share tips, advice and personal stories about my experiences dealing with a rare and chronic illness. To date, I’ve been diagnosed with Postural Orthostatic Tachycardia Syndrome and Primary Immunodeficiency Disease. I’m currently working with several universities and hospitals doing genetic and clinical testing in an attempt to find the source of my condition. I’m hoping my story can help others cope with daily life and chronic illness.I’m a 23-year-old POTS and PIDD patient with a poodle. I’ve been writing professionally since 2004 and have taken particular interest in the health advocacy industry. I live in Boca Raton, FL with my fiancé, R.J, who is a part-time bio-chemistry student and a full time bio-chemist at an emerging pharmaceutical company. My mom, Carri, is a producer for Lifetime TV’s The Balancing Act and is the creator of the series Behind the Mystery: Rare and Genetic. The show highlights different rare disease organizations and what they are doing to help patients world-wide. I’m also currently the managing editor of the blog at The Global Genes Project. If you’ve read the blog–you know that I’m very big on the method of handling illness with humor. I’m thrilled that readers are taking comfort in my daily stories and I hope my work can give other patients a positive attitude towards all of the mishegoss that comes with rare, genetic and chronic illness.

Location

Boca Raton, FL

Past Awards Participation

Second Annual Health Activist Awards

Finalist

Best Kept Secret

Sixth Annual WEGO Health Awards

Nominations

Hilarious Patient Leader

Finalist

Patient Leader Hero

Third Annual Health Activist Awards

Nominations

Hilarious Health Activist

Fourth Annual Health Activist Awards

Nominations

Hilarious Health Activist
IlanaJacqueline

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