IlanaJacqueline

Patient Leader

Let’s Feel Better was created to share tips, advice and personal stories about my experiences dealing with a rare and chronic illness. To date, I’ve been diagnosed with Postural Orthostatic Tachycardia Syndrome and Primary Immunodeficiency Disease. I’m currently working with several universities and hospitals doing genetic and clinical testing in an attempt to find the source of my condition. I’m hoping my story can help others cope with daily life and chronic illness.I’m a 23-year-old POTS and PIDD patient with a poodle. I’ve been writing professionally since 2004 and have taken particular interest in the health advocacy industry. I live in Boca Raton, FL with my fiancé, R.J, who is a part-time bio-chemistry student and a full time bio-chemist at an emerging pharmaceutical company. My mom, Carri, is a producer for Lifetime TV’s The Balancing Act and is the creator of the series Behind the Mystery: Rare and Genetic. The show highlights different rare disease organizations and what they are doing to help patients world-wide. I’m also currently the managing editor of the blog at The Global Genes Project. If you’ve read the blog–you know that I’m very big on the method of handling illness with humor. I’m thrilled that readers are taking comfort in my daily stories and I hope my work can give other patients a positive attitude towards all of the mishegoss that comes with rare, genetic and chronic illness.

Location

Boca Raton, FL

Nominations

Hilarious Health Activist Hilarious Patient Leader

Finalist

Best Kept Secret Patient Leader Hero

Ilana's blog is inspiring. She takes what is essentially a really hopeless situation for people with incurable disease and makes it a relatable laugh for people going through it.  — Sammy

She is an inspiration. She makes me laugh. She has great info  — Carri

Ilana is an inspiration in the face of challenges...and does it with humor! Thats the kind of person I want to be!  — Dawn

Her blog helps me put life into perspective and stay positive. Laughter is the best medicine.  — Robby

Her site is not only routinely informative, it is hilarious, sardonic, witty, clever and real.  — Susan

She is inspirational, quirky, funny and above all informative. Just the sort of writing to engage her young audience.  — Professor Ursula

In the face of severe health adversity that I encounter in every single student I teach throughout the day, I take time to read www.letsfeelbetter.com and get a shot of HAPPY! HYSTERICAL!  — Banetta

Ilana is truly inspiring! She's better than Starbucks in the morning!!  — Andrea

Ilana talks the way REAL people talk. You feel like you are sitting next to her reading her blog because she isn't trying to be proper or formal, she's being real.  — Julie

Ilana takes her personal struggles, makes you hear her voice, sometimes makes you laugh, but always makes you listen and understand an experience that is rare and uncommon.  — Luisa

I love this blog and the writer's voice! Ilana's blog puts a rainbow and sunshine into my otherwise dreary life. :)  — Katie

She's amazing and since I met when I was 11-she's always made me laugh! Everytime I go on her blog I feel inspired, hopeful, and all around more cheerful! And I know she does the same for others! How could she not deserve this award?  — Jade

I knew Illana's writings were going to be hilarious when I first saw her blog title: "Let's Feel Better - Dragging Dysautonomia Through My 20s One Bitchy, Blunt & Belligerent Blog Post at a Time." Illana posts are informative as well as funny - just what chronic illness community needs!

Ilanas sharp sense of humor and honesty about bodily functions, work and relationships makes dealing with a chronic disease a lot more tolerable.  — carri

IlanaJacqueline

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