Ssebandeke Ashiraf

Patient Leader

Ssebandeke Ashiraf has fifteen years' experience in sickle cell advocacy with a focus on improving the quality of life of people living with sickle cell disease in rural areas. Currently, Ashiraf is the Co-founder and Executive Director of Action Against Sickle Cell Disease not for profit sickle cell advocacy organization in Uganda. His organization works with communities affected by sickle cell disease to bring access to healthcare as well as focusing on sickle cell screening. He is a 2019 Young African Leadership Initiative Fellow He is Uganda’s country representative and Kampala correspondent for African Sickle Cell News and World Report – Nigeria. He is a recipient of 2015 International Sickle Cell Advocate of the Year Award from Sickle Cell 101, USA and 2018 Most Outstanding Achievement Award from Makerere University Business School in recognition of his leadership and sickle cell advocacy. Ashiraf desires to improve the quality of life of people living with sickle cell disease through the creation of point of care inform of sickle cell clinics. He is committed to realizing a sickle cell free generation through providing sickle cell screening services and helping every person to know their sickle cell status.

Location

Kampala, C

Nominations

Best in Show: Twitter Best Kept Secret Best in Show: Blog Best in Show: Facebook

Finalist

Best in Show: Facebook

I5 years of Sickecell advocacy  — Bbosa

Ashiraf has been outstanding over the years in advocating for Sickle Cell Patients and also creating awareness alongside soliciting for funds & help to save the sicklers. He is very good at advocation through online channels eg social sites say Facebook, Twitter, Instagram, etc Ashiraf really deserves the award. He has created a big difference  — CHRISTOPHER

This person contributes a lot to sickle cell in Uganda but has not been recognized yet his work has changed many lives.  — Kamulali

Ssebandeke Ashiraf is a champion in fighting against ignorance about sickle cell disease. He has dedicated a lot of his time in sensitizing people about sickle cell disease. A disease that affects many people in Uganda and claiming lives of many who think its witchcraft. He strive to decrease the number of 63 children who die everyday.  — Sickle cell

Ssebandeke Ashiraf is a champion in fighting against ignorance about sickle cell disease. He has dedicated a lot of his time in sensitizing people about sickle cell disease. A disease that affects many people in Uganda and claiming lives of many who think its witchcraft. He strive to decrease the number of 63 children who die everyday.

Ashiraf is a leading sickle cell disease advocate and a leader in his sickle cell community. He has helped very many people living with sickle cell disease, caregivers and parents to overcome psychosocial challenges. To Ashraf Facebook is not just a social tool but a platform to raise awareness about the disease and support those who are affected  — Fayzal

Ssebandeke Ashiraf

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