Jenny quietly blogs her way through the complexities of Ehlers Danlos Syndrome, Platelet function defects and trying to live a 'normal' life.
This lady suffers from a very rare and painful condition, but manages to face each day and help many others with her quest to teach the world about her condition Ehlers Danlos Syndrome. — Emma
Doing lots to raise Ehlers Danlos Syndrome awareness and educate about a little-known and even less understood condition. Campaigning for compassion for sufferers in the field of education and the wider community.
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Healthcare Collaborator: Patient Nominee
Best Kept Secret Nominee
Hilarious Patient Leader Nominee
Best in Show: Blog Nominee
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