Jenny from Cheetahs In My Shoes

Patient Leader

Nominations

Best Kept Secret

Jenny quietly blogs her way through the complexities of Ehlers Danlos Syndrome, Platelet function defects and trying to live a 'normal' life.

This lady suffers from a very rare and painful condition, but manages to face each day and help many others with her quest to teach the world about her condition Ehlers Danlos Syndrome.  — Emma

Doing lots to raise Ehlers Danlos Syndrome awareness and educate about a little-known and even less understood condition. Campaigning for compassion for sufferers in the field of education and the wider community.

Jenny from Cheetahs In My Shoes

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