Discovering we have a chronic illness can be devastating and life-altering. I know what you're going through. Illness is isolating, confronting, confusing. Our social circles start to shrink and, sometimes, vanish. Our friends and family just don't know how to relate to us and our new situation, especially if we still look well. Our opportunities seem to dissolve before our eyes. Our get up and go, gets up and leaves. And more than anything, we want our lives back. If I've learned anything from this journey, it's this -- illness is not the end of the world. Actually, it can be a beginning of a new life, a new era. We may never get our old lives back. But life changes every day, doesn't it? Do we really want to go backwards? We forge ahead! And we realize that not all change is bad. We've been offered a time to reassess our abilities, our desires, our faith and our passions and, while being realistic as well as creative, we sculpt a new life. We reinvent ourselves. Out of my own journey through chronic illness (Asthma, Prinzmetal's Angina, Arthritis, Fibromuscular Dysplasia, Hypermobility) grew a website - pajamadaze.com. Pajama Daze is a motivational, informational, inspirational and entertaining website for those with chronic illness, pain & fatigue. The website features blogs, useful links, creative pages & more. What I love about Pajama Daze is that its audience plays a major role in the growth and changes of the website. Pajama Daze is responsive to suggestions from visitors. Over time, the site has evolved to feature stories from those who lost jobs due to illness, then created their own Joyful Work...artistic and poetic creations by those with chronic conditions...Useful Links, Pajama Jobs, book reviews on PJ's Bookshelf, and an Entertainment Center. Pajama Daze also has a presence on Facebook and Twitter, sharing up-to-date information, inspirational items, healthy food ideas, humor, and other material of interest to those who have health issues. Pajama Daze is a work in progress, a labor of love, and my Joyful Work! I'm so blessed to connect with so many beautiful souls also on a "chronic journey" and am so grateful for the technology to do so! Thank you for the nominations! I'm humbled and totally psyched at the same time! And PJ the teddy bear, our mascot, is over the moon! :-)
CB (Pajama Daze Author) has been extremely helpful to me since finding her on Twitter. She works hard on her website/blog (PajamaDaze.com) to provide not only information relating to medical issues and healthy cooking, but also entertainment for us "Spoonies". There is a section on the site for "Joyful Work" and "Creative in our Pajamas" that feature a few disabled people and show us that we can still do what we love, even if it's at a much slower pace than we were once used to and we can do it in our jammies! — ChrystalAnn84
Shares pertinent and appropriate information for people with chronic illnesses.
They always have fantastic, helpful articles about many different types of health related issues. And they are also very interactive and helpful with others online. — Mary
I’m a Patient Leader