I have been a caregiver for 23 years. I have worked with disabled adults, mentally challenged patients, geriatrics, cancer patients. I have worked with end of life patients also. I have worked privately for the past 13 years. My motto has always been treat the patient as I want to be treated when my turn comes. It takes a special heart to be a care giver. It can't be only about the money. You have to be full of love, compassion and patience. I have been taking care of my brother for the past six years who has Multiple System Atrophy. This is a very rare disease, which has multiple symptoms. My brother who once worked and drove is now pretty much bed bound, can not walk or stand. He has to be fed at times. He needs help with all activities he tries to perform, down to brushing his teeth. It is an honor to be able to walk with him through this journey, especially now that we are in the Hospice stage.
I’m a Patient Leader