Patient Leader

I have been a caregiver for 23 years. I have worked with disabled adults, mentally challenged patients, geriatrics, cancer patients. I have worked with end of life patients also. I have worked privately for the past 13 years. My motto has always been treat the patient as I want to be treated when my turn comes. It takes a special heart to be a care giver. It can't be only about the money. You have to be full of love, compassion and patience. I have been taking care of my brother for the past six years who has Multiple System Atrophy. This is a very rare disease, which has multiple symptoms. My brother who once worked and drove is now pretty much bed bound, can not walk or stand. He has to be fed at times. He needs help with all activities he tries to perform, down to brushing his teeth. It is an honor to be able to walk with him through this journey, especially now that we are in the Hospice stage.


Best in Show: Blog Advocating For Another Best Kept Secret

Terry struggles daily to give her brother the loving care he deserves as he battles a devastating neurodegenerative disease called Multiple System Atrophy. She types out her blog about these daily tribulations during stolen moments when her body would rather be sleeping - but writing is the salve for her soul. It is also a true inspiration for others in this same fight. Love may not heal all in the physical world but it reaches far beyond and radiates from her words into the hearts of her readers.  — Pam

Terry has created a safe haven for caregivers of those with Multiple System Atrophy. She has a unique ability to uplift others through sharing her original writings and poetry. Terry takes the time to acknowledge and appreciate every person who drops by and leaves a comment or a like at her site and she creates new ways to engage the community.  — Pam

She is unselfish with her time and does her best to be there for others  — Lezlie


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