I am a former Victim's Advocate who has shifted to advocating for those with intellectual and physical challenges, and their caregivers. My special needs journey began in 2003 when my oldest son was diagnosed with Cerebral Palsy at 9 months of age. After years of fighting with physicians and forcing their discovery of his intractable epilepsy, the damage had been done. After another 4 years of medication "experimentation", we moved forward with the best thing we have ever done for him - his brain surgery. He had a full Left-Sided Hemispherectomy on June 29, 2012 at 9 years old. Along the way, he has been also been diagnosed with Intractable Epilepsy, Cerebral Palsy, Autism, Sensory Processing Disorder, Developmental Delays, Binocularity Vision Disorders including Exotropia, Heterophoria and Palsy of Conjugate Gaze. Through our journey, I've turned a personal blog into a trusted special needs community blog and resource with multiple contributors, Special Happens. I have also expanded Special Happens to include a growing special needs resource directory (the SpeciaList). I advocate heavily in the special needs community, have been published in various books, and continually submit articles and opinion pieces both online and in print. I also serve as a Member of the Board of Directors on the SPD Foundation.
I’m a Patient Leader