I started my blog, Occupy ME, in February 2012 with one fundamental goal: to speak the truth about living with Myalgic Encephalomyelitis (sometimes called Chronic Fatigue Syndrome). This disease is more disabling than MS or congestive heart failure, and yet people with ME are invisible to the world. No more! I write to give voice to the struggle. I want people with ME to have the information they need to advocate for themselves and each other. Occupy ME covers politics, science, and life with ME. Nothing is more rewarding to me than hearing how people have used my blog to inform their own advocacy.
I’m a Patient Leader