Dystonia and Me

Patient Leader

I suffer from Early Onset Generalized Dystonia, which has been part of my daily life since 2012. Over the last few years I have also been diagnosed with Ehlers Danlos Syndrome Type 3, Postural Orthostatic Tachycardia Syndrome, Autonomic Dysfunction, Endometriosis, Pain Triggered Non Epileptic Seizures, and Chronic Neurological Lyme Disease. I started my blog Dystonia and Me to help increase awareness of these conditions, to advocate for myself and others, and to show the reality of living life with a chronic condition. My blog has evolved into discussing all of my conditions, how they impact my life. Awareness is key to finding better treatments and in time a cure!

Location

Abingdon, ENG

Nominations

Best in Show: Blog

Past Awards Participation

Third Annual Health Activist Awards

Nominations

Best in Show: Facebook Best in Show: Twitter Best Kept Secret Health Activist Hero Best in Show: Blog

Fifth Annual Health Activist Awards

Nominations

Best in Show: Blog

Sixth Annual WEGO Health Awards

Nominations

Best in Show: Blog
Dystonia and Me
Endorse Dystonia and Me (1)

What is an endorsement?

You Might Also Like

Caron Cares

Best in Show: Facebook Nominee

The Stolen Colon | Stephanie

Best in Show: Blog Nominee

Best in Show: Community or Forum Nominee

Bob McEachern

Best in Show: Blog Nominee

Best Kept Secret Nominee

Daniel G Garza

Best in Show: Podcast Nominee

Patient Leader Hero Nominee

Dr. Deepak Arora

Best in Show: YouTube Nominee

Hilarious Patient Leader Nominee

Heather C. Aspell

Best in Show: Pinterest Nominee

Best in Show: Instagram Nominee

Kerry Wong

Patient Leader Hero Nominee

Patient Leader Hero Nominee

Hannah Blum

Best in Show: Youtube Nominee

Best in Show: Instagram Nominee

indisposedandundiagnosed

Advocating For Another Nominee

Best in Show: Instagram Nominee

Wanda M. Argersinger

Hilarious Patient Leader Nominee

Add Your Nomination