Dystonia and Me

Patient Leader

I suffer from Early Onset Generalized Dystonia, which has been part of my daily life since 2012. Over the last few years I have also been diagnosed with Ehlers Danlos Syndrome Type 3, Postural Orthostatic Tachycardia Syndrome, Autonomic Dysfunction, Endometriosis, Pain Triggered Non Epileptic Seizures, and Chronic Neurological Lyme Disease. I started my blog Dystonia and Me to help increase awareness of these conditions, to advocate for myself and others, and to show the reality of living life with a chronic condition. My blog has evolved into discussing all of my conditions, how they impact my life. Awareness is key to finding better treatments and in time a cure!

Location

Abingdon, ENG

Nominations

Best in Show: Blog

Past Awards Participation

Third Annual Health Activist Awards

Nominations

Best in Show: Facebook Best in Show: Twitter Best Kept Secret Health Activist Hero Best in Show: Blog

Fifth Annual Health Activist Awards

Nominations

Best in Show: Blog

Sixth Annual WEGO Health Awards

Nominations

Best in Show: Blog
Dystonia and Me

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