Suzanne

Patient Leader

I was a Medical/Educational ASL Interpreter & in ’02, I was in a catastrophic car accident. I suffered a TBI & had 3 years of brain injury rehab. I’ve endured multiple injuries/surgeries & I live with several high impact painful illnesses, including: RSD, RA, EDS4, GP, DDD, Chiari & more. In 2005, I became a Chemo-angel & later became a Mentor for others living with RSD/CRPS, like me. I became a support group leader for RSDSA & later became a certified support group leader for all chronic pain patients. I became & continue to be a WEGO patient leader since 2011. In 2013, I was the finalist for the “Unsung Hero Award” from WEGO Health. I’ve been on the Board of Directors of 2 different Non-Profits & I’ve been the Director of Communications for the Deaf/HoH for one of them. With a background in journalism, I was a staff columnist for the Ntl. Pain Report & I have over 42 published articles. I have had my blog, “Tears of Truth” @tearsoftruth.com (which has been nominated for “Best in Show-Blog” in 2018) since 2011. I have done numerous Awareness events & a lot of volunteer Advocacy work. For working closely with patients & tirelessly helping all people who live with pain, I was awarded the U.S. Pain Ambassador of the year Award In 2016. I also received a special Tribute in 2016 from the Governor of my state of Michigan. I was diagnosed with a tumor in my inner ear & Mastoid, called a “Cholesteatoma” in May 2019. I had to have a major skull base & ear surgery called a “Tympanomastoidectomy” on July 26, 2019. I am looking at another of that same surgery in Spring 2020. I’ve been Hard of Hearing since childhood, but my hearing quickly declined after that car accident in 2002 & after I suffered a TBI. I’m Deaf in my right ear & high moderate to severe Hard of Hearing in my left ear.Cholesteatoma is a lifelong rare disease & a battle in which one endures a lot of pain & is robbed of their hearing. I will continue to advocate for all Chronic pain patients.

Location

Canton, MI

Finalist

Unsung Hero

She is a Mom to everyone she meets. She makes sure you are okay and makes sure you get help. She is always raising awareness for RSD/CRPS and talking to her always brings a smile to anyones face! She is my hero!  — RSDCRPSDoesntOwnMe

Suzanne is always someone you can go to in a time of need and get support. She stops what she is doing and cares about your situation 120%. She takes time out of her normal life to organize fundraisers, awareness events, and educational displays in order to educate the world about CRPS. She is truly my hero and I cannot think of life with her!  — RSDCRPSDoesntOwnMe

Outstanding blog dealing with the miss information campaign surrounding Suboxone and buprenorphine as safe alternatives to opiates

Suzanne

You Might Also Like

Dr.Sylvia Faircloth

Patient Leader Hero Nominee

Best Kept Secret Nominee

Melissa

Best Kept Secret Nominee

Rookie of the Year Nominee

300 lbs and Runnin

Rookie of the Year Nominee

Patient Leader Hero Nominee

HappyHealthyHer

Best in Show: Community Nominee