Hi my name is Rachel and I am also known as The Myasthenia Kid. I have been blogging since 2008. I try to raise awareness of many medical conditions not just those that affect me. I suddenly became very sick in 2007 completely out of the blue. However looking back now I can see there were signs for years before hand that things weren't right. My blog also features my 3 Weimaraners (dogs) and of course my husband. I want to help patients feel more in control and gain knowledge of how the system works in the UK. I also want to help all my readers know they aren't alone. My medical conditions are Ehlers Danlos Syndrome Hypermobility type and Dysautonomia to name a few.
I’m a Patient Leader