Medically Me

Patient Leader

Nominations

Best in Show: Facebook Best Kept Secret

Not only has the founder of the website, Kassady Oberacker reached out to the Ehlers Danlos Syndrome community as an advocate, but she has also become a provider of information and educational resources on related conditions, such as Postural Orthostatic Tachycardia Syndrome, Gastroparesis, Chiari, MCAD, neuropathy, and other valuable knowledge for patients, advocates, and medical professionals. Her approach is inclusive of other networks and frequently she can be seen working in conjunction with other networks and organizations. This year, MedicallyMe.com brought on Ashley Ann Brown as a website founder and contributor, allowing their advocacy and awareness work to expand in leaps and bounds. They have since added a glossary of terms, research bank, and a list of organizations where people can go that are looking for information on EDS and related conditions. Their crowning highlight at this moment is a Social Security Disability piece written by Ashley Ann.  — K

Medically Me

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