Joan McParland

Patient Leader

I developed sudden onset Myalgic Encephalomyelitis in Oct 1999. I was previously very fit, healthy, I lost my career, social life and ability to care for myself. My symptoms consist of extreme nausea, dizziness, bouts of shivering then sweating, noise and light intolerance, transient paralysis and a brain that no longer functions properly. I was completely bed-bound for the next 7years. A gradual improvement over the next 5 years allowed me to form a patient charity in 2011. 18 year on, I remain 80% bed/housebound with severely restricted energy levels but with the help of today's technology, I will continue to 'fight' for the truth and the answers for myself, and for all patients

Past Awards Participation

Fourth Annual Health Activist Awards


Health Activist Hero

Sixth Annual WEGO Health Awards


Patient Leader Hero
Joan McParland

You Might Also Like

The Transplant Helper (Jim Murrell)

Best in Show: Youtube Nominee

Peta Bush

Healthcare Collaborator: Patient Nominee