Jane Colby FRSA

Patient Leader

As a school principal I developed severe ME from a polio-related virus (1985). An ME activist since 1991, I co-authored the largest ever study of ME (Journal of Chronic Fatigue Syndrome 1997) revealing ME as the biggest cause of long term school sickness absence. I was on the UK Chief Medical Officer's Working Group and my recommendations were in the Government's 2013 statutory guide for Local Authorities. At Tymes Trust (The Young ME Sufferers Trust) I'm voluntary Exec Director. My work is in medical and educational journals, at www.tymestrust.org and www.methenewplague.net. I've written two books, and I loved editing YOUNG HEARTS - inspirational poetry by children and young people with ME.


Lifetime Achievement Award Health Activist Hero Lifetime Achievement


Lifetime Achievement

I have had the pleasure of volunteering for Jane & the TYMES Trust for some years now and can attest to her continuing enduring commitment to fighting for the rights of children with ME. Jane has spent over 25 years running the TYMES Trust and her support for children with ME is unwavering. Her work is invaluable.  — Debbie

Jane Colby is an amazing lady, herself suffering from ME she works tirelessly to support children, young people & their families through the Tymes Trust charity who she is the Executive director of. Many of us families have been supported & given advice from health through to education. An invaluable charity, Jane has passion & really cares.  — sophie

Jane works tirelessly for the correct treatment of M.E. on behalf of children with M.E, their parents and the wider M.E. community, while running the charity Tymes Trust (run entirely by volunteers.)

Jane Colby FRSA

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