Kristen Brunton

Patient Leader

I expanded my knowledge of medical information and became the push behind finding the name of the medical mystery that had been plaguing my body. In 2012 I finally learned the name of my genetic condition, Ehlers-Danlos Syndrome or EDS. Not only had I been diagnosed but my two infant children were already exhibiting symptoms. Self advocacy is important but no more important than giving the doctors responsible for our treatment the information they are lacking. is the product of my own personal journey to Riot Against... Ehlers-Danlos Syndrome and the stories of those who are brave enough to share their own journeys to Riot Against...


Rookie of the Year

She is an epic at health advocacy and her website has helped out a lot.

Kristen Brunton

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