My name is Aaron, and I have Crohn's, AVN, Osteoporosis, a rare genetic disease called hypophosphatasia and 4 total hip replacements. I started my advocacy work in 2009 because I wanted to meet other IBD patients so I jumped in online and started a page. Today that has grown into something I would've never dreamed of and I am very passionate about helping others. It's taken a team to get to where I am today but I want to makesure people have a safe place to come and get support and find credible information. I also have a MSc in Biomedical research with my end game being a P.hD. "Won't it be great when we come together, not to work towards a cure but to celebrate its discovery!"
Aaron goes above and beyond in his fight against IBD while raising awareness all at the same time. He has created multiple outlets for support and is an amazing advocate. — Megan
Against incredible odds, IBD and immense health issues from medication side effects (see Aarron’s Website blog), Aarron has never stopped reaching out to fellow suffers. He has dedicated his life to supporting other’s. He’s an awesome IBD advocate, even tweeting support post op recovery. He’s an IBD hero and an inspiration. — Anthony
Aaron's been hard at work over the past several years raising awareness and funds for IBD research. As he's advanced in his college career, he's also advanced in advocacy this year with speaking events as a patient & science pro. Even a double hip replacement hasn't slowed him down. It's been a joy to work with Aaron and watch his continued growth.
Aaron didn't waste any time jumping into advocacy work after he was diagnosed with IBD. Since 2010, he's worked tirelessly across various mediums from Facebook to advocating on the Hill, to support fellow patients. And his work doesn't stop there...he's dedicating his career to IBD research to help discover treatments & cures! He truly does it all! — Lilly
Aaron uses his extensive higher education to make a difference in the advocacy community daily. He is such a source of GOOD information and encouragement in the IBD community, and I am forever grateful to have connected with him! — Kenzie
I’m a Patient Leader