Nelly Sutjipto

Patient Leader

My name is Nelly Sutjipto. I'm a mother, wife, daughter, grandaughter and friend. From just looking at me, you wouldn't know that I fight a daily battle. I fight against a disease called Charcot Marie Tooth, also known as CMT. Through my journey with this incurable disease, I have had many ups and downs. It is my mission to help raise awareness, funds for a cure and to help bring people together who often feel so alone because of CMT. As the former president of the CMTAA, support group leader of an International online support group which i founded in 2013 and motivational speaker, I hope to shine a light on CMT and its struggles.


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Nelly Sutjipto

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