Global Hydranencephaly Foundation

Patient Leader

Nominations

Advocating for Another Best Team Performance

She does so much to make our children's condition known. Best Advocate I know!  — Jolene

Ali has created a wonderful place for families who have previously felt alone and lost to find support to help create better lives for children and families with hydranencephaly.  — Barbara

She helps so many families who have a very grim diagnosis for their children. And with finding out something so heartbreaking she is always such a wealth of knowledge and hope. She even helps those whose children are just medically fragile and need someone to talk to.  — Vanessa

Past Awards Participation

Fourth Annual Health Activist Awards

Nominations

Best in Show: Facebook Best Team Performance

Winner

Best in Show: Community or Forum

Third Annual Health Activist Awards

Nominations

Best in Show: Community or Forum Best in Show: Facebook Health Activist Hero

Fifth Annual Health Activist Awards

Nominations

Best Team Performance Best in Show: Community or Forum

Sixth Annual WEGO Health Awards

Nominations

Best in Show: Community Best in Show: Facebook

2018 WEGO Health Awards

Nominations

Patient Leader Hero Best in Show: Community Best in Show: Facebook Advocating for Another
Global Hydranencephaly Foundation
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