Patient Leader

22 years of living with chronic illness: Crohn's disease and fibromyalgia. Stanford MedicineX ePatient Scholar, 2012 & 2014. Health Datapalooza Consumers Circle 2015 & 2016. Six years experience as a support group facilitator, patient advocate. Educational background: graphic design, MBA.


Baltimore, MD


Best Kept Secret Best in Show: Blog Best in Show: Facebook Healthcare Collaborator: Patient

I first met Carly when I began working with her at a small consulting firm in the fall of 2009. Shortly thereafter I learned about the great work she did supporting/leading a local advocacy group for Chrohn's Disease. Two years ago, she inspired me to sign up for my first charity walk to support research for this and other related illnesses. This illness is not well known, nor is it glamorous, but Carly tirelessly works to educate and raise awareness and funding to combat the illness, that she herself suffers from. I'm amazed at all that she is able to do on a daily basis!  — Heather

Carly is an engaged Patient Leader who proudly shares her story online and at health conferences. She is friendly and dedicated to raising awareness for those (like herself) who live with chronic illness.  — Amanda


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