I'm fairly new to the Health Activist scene. I started RheumaGram - Letters to My RA at the beginning of September as a way to interact with more patients with Rheumatoid Arthritis on FaceBook. I began writing silly little blurbs about how I deal with very active AutoImmune Arthritis every day, what happened then surprised even me...people started following the page and it changed from silly little blurbs to some very good information and education. I was diagnosed at 2 with Juvenile Arthritis, as an adult my diagnosis is now Rheumatoid Arthritis. I have a blog, also called RheumaGram where I'm able to go into greater depth about what is happening with my health and I also have a Pinterest account where I have created RheumaGrams to educate the masses about RA. All of this said, the nomination is for the best community/forum and I wouldn't be here typing this without my people, they encourage me and one another. They are the best group I could have possibly hoped for when I started this page. At the end of a post a few days ago I wrote "we learn together, we live together" that is the motto of my group. I hope this year to become more involved on the Health Activist side of the RA community, Rheumatoid Arthritis is a misunderstood disease and I hope with some effort, I can help change that.
I’m a Patient Leader