There’s one thing that I know for sure. It’s not complicated and is without hesitation – my son is my hero. On May 4th, 2016 (1:35 pm to be exact) my son received his diagnosis of autism at the age of 2-1/2. At this time, he was non-verbal, little to no eye contact, repetitive behaviors, eating only 3 different foods, and slowly folding into his own world. I promised my son that I would make his fight my fight, too. My voice would be his voice, and through it all, we would remain steadfast in our faith. Our journey hasn’t been an easy one. We have struggled to find resources readily available, and have heard there are “significant and indefinite” waiting lists more than we care to share. Amidst all of the emails, phone calls, insurance dilemmas, and therapy conversations, there grows a certain level of loneliness. A parent or caregiver can quickly lose sight of their own identity and can struggle with finding a place to fit in. I remember many times asking myself, “Where are my people?” Sometimes I want to talk to someone that “gets it”. That “been there done that” kinda thing. In January 2019, I formed the nonprofit My Autism Tribe to connect all autism advocates through online platforms. I'm proud to say that we have immersed ourselves into not only the online community, but face-to-face in various communities, sharing educational resources and stories of autism acceptance & inclusion. My goal is to see that all individuals, regardless of how they think, feel, and socialize, will be recognized for their gifts. We are in it together – as friends, partners, community…a tribe.
Susan Scott, inspired by her son Alex, saw a need for advocacy and support in the Autism community so she began the nonprofit, My Autism Tribe. She spreads awareness through events like Grazing Awareness. She regularly posts podcasts. She connects those newly facing the diagnosis and those that have been on the journey with resources and support. — Gera
I’m a Patient Leader