Am Josepha chokara,aim a sickle cell warrior, I was diagnosed having sickle cell anaemia at the age of 2 ½ years after frequent crisis especially after 2 years of my life. After the result my mother decided to take care of me no matter what, she gave me good nutrition, made sure she treated my ailments at an earliest opportunity, started taking me to the clinic for monthly visits and I started taking folic acid on daily basis.having crisis became my life and at last my wish came true I have a 3 year boy child who has added to my story. To be sick is not the end of an active life.The birth of my child gave me a new beginning, I wanted to tell all those around me that Sickle Cell is not a death sentence, I wanted to spread the word especially to the parents who are facing the same challenge in life and this is why I decided to be a Sickle Cell Champion, I started visiting homes where there were Sickle Cell children and taking as an example and that became my passion, to tell people that the disease is not a death sentence, I am happy that I have managed to bring a smile to many parents and children. I still wanted to reach more people with the same massage, including the government and I knew that without concerted efforts I cannot do it alone that is why in collaborating with the doctors in the Sickle Cell department at the referral hospital (Weill Bugando) and those who have been affected by sickle cell as patients, parents/ caregivers to children decided to create a voice through joint planned advocacy sessions both physical, media and online platforms , school and home visits, and have been able to reach more than 10000 people in 2018/ 2019. We continue to discuss Sickle Cell disease. I and a few others have decided to form an organization called Tanzania Sickle Cell Warriors (TASIWA) so that we reach more people by operating legally in Tanzania.
She works so hard to bring sickle cell awareness to the world. — Christina
I’m a Patient Leader