I became a Advocate after nearly loosing my life in 2011. During my recovery from my 3rd heart surgery,,,, I had PTSD from all that I had been through medically! I found that I was not alone! Many people struggle with illness, getting care and diagnosis. I discovered through my own research that I had a Genetic Connective Tissue Disease called Ehlers Danlos. I was dismissed by my doctors.... However, It was later confirmed by a genetic specialist I was later diagnosed with Dysautonomia and Reynauds. Having medical issues, can take a toll! It can easily be overwhelming at times or even frustrating. You can feel alone and powerless. I vowed, that when I fully recovered I would help other patients, like me who struggled. I started publicly sharing my story with medical students & staff, I was honored to share part of my story on the Dr. Oz show, and also with the company that manufactured the heart valve that saved my life,! I also happily share my story with our local chapter of The American Heart Association. More importantly, I was inspired to start my own business as a Wellness Advocate & Speaker. Mischel Satunas -HeartSmart LLC . was born from my deep desire to PAY IT FORWARD. My dream is to educate, inspire and empower others to be better, stronger, braver patients! We need to be team players with our physicians for the best outcome. Collectively as advocates, we can create positive , powerful change. I am so very grateful for the gift of my life. I strongly believe that sharing my story saves lives. I am proud of the work I do as an advocate and the feedback I get humbles me and fills my heart. Giving back, and paying it forward has been so HEALING for me. When you GIVE , YOU GET! When you bless others, in turn.... YOU are blessed! I think those of us who have been challenged by illness , and have chosen to be ADVOCATES can say, WE TRULY understand, and when we say we want to help... We mean it with all our heart!
Geek Health Activist Nominee
I’m a Patient Leader