jason is a social scientist

Patient Leader

for 1001 nights i have taken my hiv medication live on the book of face in front of friends family and strangers...i do so in order to embrace stigma dispel ignorance and find support if i’d have people take only one thing away from my show...it would be the knowledge that hiv is preventable...i spend up to 4 hours each night teaching people about #PrEP #PEP and #UequalsU my videos on facebook have garnered millions of views and a community of almost 14000 people has followed my page on facebook...each of them able to tell their friends family and health care professionals about the advancements in hiv prevention...many of the people have been following the page for years and provide me with an endless supply of support in addition to swallowing my medication live on facebook...i also take my showers live on facebook...as a registered nurse with 13 years of inpatient experience...i am a mental health professional...but i am also a patient i have had 5 of my own psychiatric hospitalizations...i experience depression, anxiety, and ptsd...and i know if i haven’t showered in 7 days there is a good chance that i am depressed...so for me not showering is depression not showering, not checking the mail, not going out with friends, not going to work...that is depression...40000 unread emails and a full voice mail box...that is depression...depression is a series of missed appointments and disappointments rather than beating up on myself for all of the things i am not doing...instead i choose one small achievable goal that i can do...and for me that goal is to shower when i was still working...one of the things i would teach my patients is to pick someone they trust and cares about them to hold them accountable with positive reinforcement...by going live each day with both my pills and my showers...i implicitly give the audience permission to hold me accountable i am honored and grateful to be nominated...thank you for your consideration

Location

Madison, WI

Past Awards Participation

2019 WEGO Health Awards

Nominations

Best in Show: Facebook Advocating for Another Hilarious Patient Leader Best in Show: Community Patient Leader Hero Best Kept Secret Rookie of the Year
jason is a social scientist

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