Saira Sufi-Team Watience

Patient Leader

Team Watience is dedicated to increasing public awareness of aplastic anemia and other bone marrow failure diseases. It was created to provide a caring place where families, survivors, and interested funders can come together to share their experience on healthy grieving, mental health, and disease support programs. Team Watience fans and partners are also working together to promote the National Bone Marrow Donor Program registry to reduce the terrible impact of bone marrow failure diseases, and improve survival rates nationwide. Hadi’s Story In September of 2017, Hadi's twin brother, Zakaria threw a book at him. We didn't think much of Hadi's black eye at the time, but then we noticed additional bruises on his back. After a stay at the Fairfax INOVA hospital, Hadi was diagnosed with aplastic anemia. Aplastic anemia is a rare disease in which the bone marrow and the hematopoietic stem cells that reside within are damaged, causing a deficiency of all three blood cell types: red blood cells, white blood cells, and platelets. Our family was told that the only cure for Hadi was a bone marrow transplant from a full sibling. His twin brother, Zakaria was tested to see if he was bone marrow match for Hadi. When it was discovered he was not a match, we were sent to the National Institutes of Health to try immunotherapy instead. When immunotherapy was unsuccessful, we were told to go forward with a bone marrow transplant from an unrelated, matched donor. Hadi underwent two bone marrow transplants that were unsuccessful. He lost his battle to aplastic anemia before we could begin his third transplant. Our family is grateful to the bone marrow donors who helped him fight this disease, and we are dedicated to increasing this type of donor support. “Team Watience” is a phrase that Hadi came up with, a combination of "We Got This and Team Patience."

Location

Sterling, VA

Nominations

Advocating for Another Best Team Performance Best in Show: Blog

This mama and family dynamic is unmatched. After loosing their son to bone marrow failure, they continue to support our patient community and raise funds for medical research. She started a blog to help others experiencing grief/child loss. The dedication it takes to keep going after death...award level and beyond.  — Lydia

This mama and family dynamic is unmatched. After loosing their son to bone marrow failure, they continue to support our patient community and raise funds for medical research. She started a blog to help others experiencing grief/child loss. The dedication it takes to keep going after death...award level and beyond.  — Lydia

Saira Sufi-Team Watience

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