Amy Byer Shainman

Patient Leader

AMY BYER SHAINMAN, also known as BRCA Responder, is a patient advocate who provides support and education surrounding BRCA and other hereditary cancer syndromes. She’s the executive producer of the award-winning documentary Pink & Blue: Colors of Hereditary Cancer and author of the award-winning health and medical book "Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew." Shainman is a BRCA1 gene mutation carrier and a "previvor"--meaning she is a survivor of a predisposition to cancer (a previvor is someone at extraordinarily high risk for cancer who has not had the disease). In 2010, she had two prophylactic surgeries to drastically reduce her cancer risk; a nipple sparing, skin-sparing mastectomy with reconstruction and oophorectomy with a hysterectomy. Shainman has been featured in Cure Magazine, The Jewish Journal, and The Palm Beach Post, as well as numerous live and taped television and radio segments nationwide. As a digital ambassador for the National Society of Genetic Counselors gene pool, she is considered one of fifteen influencers who have unique perspectives and knowledge in the fields of genetics and genetic counseling. Her articles have been published in The American Journal of Managed Care, Jupiter Magazine, and Oncology Nursing News. Shainman is part of the administration team of the BRCA Sisterhood, the largest support group for BRCA positive and high-risk women on Facebook and in the world. She is the co-creator of #GenCSM (Genetic Cancer Social Media). Shainman is currently consulting producer on the film Lady Parts, executive produced by Joanna Kerns. She lives in South Florida with her husband, teenagers, and dog.


Jupiter, FL


Best in Show: Twitter Best Team Performance Health Activist Hero Patient Leader Hero Best in Show: Blog


Best in Show: Pinterest

Amy Shainman deserves to win this award for Best in Shown: Twitter, for all the BRCA/HBOC activism she does on Twitter. Not a day goes by that you won't find Amy on Twitter, tweeting, RT'ing about all things BRCA. The BRCA world is gaining a voice, and it's in part due to the efforts of Amy Shainman.  — Teri

Impressive up to date Blog with print, pictures, & video detailing BRCA news & Amy’s radio & TV appearances, exec produced documentary about male & female breast cancer (Pink & Blue), where to find her many articles & published memoir: Resurrection Lily: about The BRCA Gene, Hereditary Cancers & her grandmother & locations on Twitter and Facebook  — Marla

Amy has put herself out there for years. With the support of her husband and her family, she has shared her personal journey with friends and strangers to alert them to the importance of knowing their own family's health history. Amy's blog posts the latest news on BRCA and related cancer research to educate families.  — Marla

Amy Byer Shainman

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