Patient Leader

I’m Amanda, mom of two, wife to Evan. My daughter, Aurora, was born with an unexpected diagnosis of Down Syndrome, last year. I never saw it coming. In those early months, the confusion and feelings of deep loss were real. I felt all my work to have the “perfect” family was in vain and the good life was surely over. I spent my first few weeks as a new mother, to a sweet baby girl, buried in internet searches, looking for something, anything, I could do to help her. But, without a good foundation, all the studies in the world, won’t help you care for that little one. That solid foundation is your love and a supportive community. I’m so happy you found us. We are here to help you navigate this journey. We aim to connect you with others on the same path while equipping you with tools that will leave you feeling organized for the task at hand. The dust will settle and the vision for your families life will be restored, you will have more joy and hope than you can fathom. You're made for the job, momma. Breathe and know the good life isn’t over, these are the Glory Days.


Bridgeport, WV


Advocating for Another Lifetime Achievement Patient Leader Hero Best Kept Secret

Watching my cousin Amanda advocate for her daughter Rory, while also dedicating her energy to advocating for other families who receive a Down syndrome diagnosis, has been so inspiring and beautiful. One of my closest friends has an amazing son River who has Down syndrome, so this cause is especially near and dear to my heart. Rory & River ROCK!  — Lauren


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