Lizzy D

Patient Leader

Born in St. Louis, Mo. but raised in Wichita, Kan., I was diagnosed with cystic fibrosis at 4 months old. The youngest of three, and the only child with CF, my health began to decline during her sophomore year of college, causing me to withdraw from school and move home. Four years ago, I moved to the Bay Area to focus on my health. On December 18, 2018 I was placed on the UNOS list for a double lung transplant and on February 1, 2019 I received the gift of a second chance at life. Despite the progression of my disease and organ transplantation, I enjoy traveling, photography, reading, and buying too many sweaters for my tiny dog, Tucker. One of my main goals in life now is to share my story and the importance of organ donation because without my donor I wouldn't be alive today.


Mountain View, CA


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Lizzy D

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