Jenny Livingston

Patient Leader

I’m a mom, blogger, professional patient, caffeine addict, and genuine lover of life. I was born with cystic fibrosis, as were both my older sisters. My oldest sister passed away at the age of 14 while awaiting a double lung transplant. Since then, I’ve lost several of my close friends and faced a great deal of my own health challenges. Above all else, the thing that keeps me going is connection. The online CF and chronic illness community is phenomenal! I’ve found my voice, my passion, and my purpose. If sharing my story can help even one person feel less alone in the challenges they face, I’ll consider that a huge success!


Manti, UT


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