Super Damian

Patient Leader

Damian is a sweet 4 year old with an amazing smile. ♥️ Before Damian was born, he suffered from bilateral strokes in utero. When he was a few months old, his Hematologist diagnosed him with Factor V Leiden.. a blood clotting disorder that caused his strokes. At 5 months old, Damian started his battle with epilepsy. After exhausting ALL options to treat his epilepsy (countless medications, CBD oil, Ketogenic Diet, VNS implant, steroids, etc), Damian underwent a left functional Hemispherectomy in August 2018. His entire left hemisphere was disconnected during a 9 hour brain surgery. He went 5 months seizure free, but unfortunately they returned. Damian suffers from many other conditions such as severe Cerebral Palsy, asthma, chronic lung disease, sleep apnea, Optic Nerve Hypoplasia, and so much more. He is also g-tube fed and uses supplemental oxygen when sleeping. He has had many surgeries, and countless hospital admissions and specialist clinic visits. But he still lives his life with a smile on his face. He is a true warrior. 💪🏼

Location

La Mesa, CA

Nominations

Best Kept Secret

Damian, his mom and family have done so much to educate and advocate on many health issues and disabilities. This includes but isn't limited to in utero strokes, epilepsy, hydrocephalus and more. They are teaching friends, family and the world about issues they knew nothing about. Its truly awe inspiring.  — Jenni

Super Damian

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