Lacey @more.than.midodrine

Patient Leader

Lacey is an advocate for rare and ultra-rare diseases, as she has an extremely rare form of Ehlers Danlos Syndrome, EDS with Periventricular Nodular Heterotopia Variant (EDS-PVNH).

Location

Kansas City, MO

Nominations

Best Kept Secret
Lacey @more.than.midodrine

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