Lacey is an advocate for rare and ultra-rare diseases, as she has an extremely rare form of Ehlers Danlos Syndrome, EDS with Periventricular Nodular Heterotopia Variant (EDS-PVNH).
Kansas City, MO
Health Activist Hero Nominee
I’m ready to work with Patient Leaders
I’m a Patient Leader
WEGO Health is a mission-driven company dedicated to transforming healthcare by
harnessing the experience, skills and insights of Patient Leaders.
50 Milk Street, 16th Floor
Boston, MA 02109