I am a passionate, outspoken health care strategist and activist. Having been a healthcare executive for 20+ years and advocating for both my disabled/special needs son and myself as a stage IV colorectal cancer survivor, I understand the need for connection and collaboration between health care professionals and patients. Empathy and communication are greatly lacking, and I am the authentic voice to bridge that gap. I am particularly interested in survivorship, invisible disabilities, patient centricity, and #doingawareness (as opposed to just "raising" awareness). My professional goals are to eliminate shame and stigma around living with side effects of chronic illness and increase implementation of necessary accommodations in the workplace and shared use spaces. As a mom to a son with profound disabilities, I advocate for inclusion and accessibility to increase quality of life for those who may not be able to speak and/or stand up for themselves.
Because of my education and professional healthcare experience in between my son's diagnosis and mine, my whole goal now is to LEVEL THE PLAYING FIELD between patients, industry, and providers for the latter two to have a more enriched and successful delivery outcome. I do this through multimedia and through user tools I developed on my website. — Stacy
I met Stacy at Colon Camp and she has been there for me ever since. I am also a stage 4 warrior and she has called or messaged me before any big thing I have to go through to fight thisdisease. All while continuing to be a stage 4 thriver herself and taking care of her family. — Jessica
I’m a Patient Leader