Pooja Panchamia, FieryBones

Patient Leader

I was diagnosed with RA in mid-2017. It's been a hell of a ride so far and RA still keeps surprising me every single day! Although it is manageable now, I am yet to accept the new reality, much to the distress of my doctors. I am a closed person who would bottle up emotions, so opening up about RA has not been easy. But I realized this unwanted companion is here to stay and through reading stories of other people who are going through a similar or even more challenging roller coaster would help deal with this more fiercely! So I created FieryBones, For people living with chronic auto-immune illness, it is a daily struggle to balance their personal and professional lives with the unpredictability of these painful diseases. FieryBones has been created to connect and share stories of all the people suffering from autoimmune forms of arthritis, such as Rheumatoid Arthritis, Ankylosing spondyloarthritis, Psoriatic arthritis and many others, across the world. When you read stories of how others are fiercely coping with this illness, you realize that you are not alone in this daunting journey!

Location

Mumbai, 16

Nominations

Best in Show: Blog

fierybones.com is an amazing blog and network that represents patients with RA, Ankylosing Spondylitis, and PsA and allows them to share their stories and inspire other arthritis patients to find power in their diagnosis.  — Jed

Pooja Panchamia, FieryBones

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