Jody

Patient Leader

I am a Volunteer/Advocate for Psoriatic Disease which I also suffer from - mild psoriasis and moderate to severe psoriatic arthritis. I kind of feel into advocacy when I was asked to join the National Psoriasis Foundation (NPF) at the Washington DC in 2016 for their annual visit to Capitol Hill and for hearings at the FDA, one visit was all it took and I was hooked! I love the feeling that I have some control over my disease rather than it having all the control over me and I get great satisfaction in thinking I can make a difference. Over the past few years I have visited Washington DC a few more times with the NPF and the American College of Rheumatology, testified for a Massachusetts Senate Committee to help get Step Therapy Legislation passed, wrote a resolution adopted by the MA Senate claiming August as Psoriasis Awareness Month, had an OpEd I wrote about Step Therapy published in a local paper that was picked up by online publications, I have been instrumental in getting landmark buildings in Boston "lit" in honor of psoriatic disease, volunteered at many events held by the National Psoriasis Foundation and I am constantly trying to find new ways to bring awareness to and advocate for psoriatic disease. One of the greatest parts of being an advocate are the amazing people I have met along the way. Other Advocates, Patients, Volunteers, Medical Professionals, Researchers, Non-Profits and more across the country have become friends that provide inspiration and motivation to continue to fight for patients rights and needs. I am so excited to see what the future holds!!!

Location

Plymouth, MA

Nominations

Best Kept Secret
Jody

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