I suffer from a number of chronic conditions, chiefly psoriasis and psoriatic arthritis. I have become disabled due to permanent joint damage caused by psoriatic arthritis, and have taken 7 different biologics for P/PsA. I also suffer from Fibromyalgia, insomnia and obesity. I suffer from anxiety/depression as well. Upon discovering advocacy in March of 2016 at an NPF sponsored Meet and Greet prior to the PFDD on Psoriasis at the FDA, and meeting other people with psoriasis for the first time since being diagnosed nearly 20 years prior, I was hooked and immediately started my volunteer "career". I have found my passion along this journey, and love to share milestones and happy moments along the way. I was misdiagnosed for many years, so I understand the problems those with autoimmune diseases in general, and psoriatic disease in particular can fall through the cracks. I have had wonderful experiences and also terrible experiences with health care providers, and I have been on the receiving end of plenty of ugly looks, comments and situations due to the visible nature of psoriasis. Although my feelings still get hurt, I try to educate people about my diseases, and what it is like to have an autoimmune disease (or 2...or 3). I want understanding and acceptance on the part of all who are fortunate enough to not be attacked by their own bodies. In my own, small way, I am trying to make the world a better place for all of us who have ever been made to feel ashamed or "less than".
I’m a Patient Leader