Kirsten Schultz

Patient Leader

I'm a genderqueer disabled writer and activist - and proud of it! I live with Systemic Juvenile Idiopathic Arthritis, mental health conditions, and a long laundry list of other stuff. On Not Standing Still's Disease, I focus mainly on disease-/illness-/disability-specific issues, becoming your own advocate, product reviews, and changing the world of medicine. I address issues like sex, intimacy, relationships, and self-esteem with illness and disability on Chronic Sex. There, I also focus on LGBTQIA+ issues, reproductive health, and intersectional thinking. Join us Thursday nights at 8 pm Eastern for #chronicsex chat on Twitter! My motto: do no harm but take no sh*t.


Madison, WI


Health Activist Hero Advocating For Another Best in Show: Blog Patient Leader Hero Best Kept Secret

Kirsten has lived with JIA and now, as an adult continues to help children and there families. She also openly shares her thoughts & feelings that help us all see things from a different perspective. She's also busy helping advocate in her local community. All this and a full time job, she's nothing short of amazing!  — Heather

She inspires me to become more active in my local and federal government to help other and future arthritis patients.

Kirsten does an amazing job with updating her blog. She works full time battles her disease and still finds time to keep up on her blog. She's always motivating others.  — Tara

Kirsten is one of the best health activists out there. She's knowledgeable, open, compassionate, and an excellent communicator. These are all excellent qualities, but she's also ready to nurture other activists. She encouraged me to start my own chat and subs for me when I'm not well enough to host. I wish I could clone her.  — Dawn

Kirsten Schultz

You Might Also Like

Christel Marchand Aprigliano

Health Activist Hero Nominee

Patient Leader Hero Nominee

Marisa Lancione

Best in Show: Blog Nominee


Best in Show: Twitter Nominee

Best in Show: Blog Nominee


Best in Show: Blog Nominee