Pam Bower

Patient Leader

Since 1994 Advocate for Multiple System Atrophy (MSA) and Ataxia. 1995-2000 Co-Founder International Network of Ataxia Friends: community building, sharing support and information, liaison with health professionals Since 2000 Moderator ShyDrager MSA Online support group: community building, sharing support and information, liaison with health professionals 2003-2009 Editor MSA News: reporting on MSA research and awareness news Since 2009 FB Admin- Miracles for MSA + MSA Research News + others: community building Since 2013 Board Member-Multiple System Atrophy Coalition: secretary, community building, online fundraising, research grant administration, liaison with scientists

Nominations

Best in Show: Facebook Health Activist Hero Lifetime Achievement

Winner

Best in Show: Facebook

I have nominated Pam Bower because over the last few years she has set up fb pages for regional area of the States and other nationals to help bring patients/caregivers together that are facing Multiple System Atrophy a rare neurology disorder.  — Vera

With M.S.A. being so rare there are many questions. Pam goes above and beyond to make sure she displays as much information as possible. She is very aggressive with the awareness of this terrible disease. She has led so many to an awakening of M.S.A. She is just the best.  — Terry

Pam Bower has been and continues to be a dedicated health activist for people suffering from multiple system atrophy, a rare and fatal neurodegenerative disorder. MSA affects about 13,000 adult americans. MSA is little know, but in 2013 Pam played a key role in helping the multiple System Atrophy Coalition to raise nearly $400,000, a huge increase over 2012. In addition Pam serves as a dedicated volunteer to two MSA organizations - MSA Awareness and The MSA Coalition. She is now leading the charge to have March recognized as MSA Awareness Month by the US Congress.  — Multiple

Pam works tirelessly as a volunteer to raise awareness for multiple system atrophy (MSA). MSA is a rare and terminal disorder that affects about 13,000 Americans. Under Pam's leadership and commitment to high-quality postings The MSA Coalition Facebook page has grown ten fold from 400 Likes to over 4,000 Likes in just the past 1 1/2 years.  — Multiple

An amazing world activist raising awareness of the rare and terrible incurable terminal progressive condition called multiple system atrophy. She keeps us updated throughout the world and is in touch with top neurologists. She gives us hope where there has been none. Research in this field through. Collaboration with other brain conditions is here.  — Allison

She is a gem. She is so caring and will do her best to enlighten, teach, uplift each patient and family member. She gives 100% to her cause. She deserves this and every award for her dedication and hard work  — Terry

Pam Bower

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