Patient Leader


Best in Show: Facebook

Joy is a volunteer Facebook administrator for the Alport Syndrome Foundation. Alport Syndrome is a genetic kidney disease that has affected several generations of Joy's family, including her Uncle, son and herself. She is dedicated to helping others with the disease with emotional support and educational empowerment. She knows how important it is to connect with others when you have a chronic illness and she works every day to make this happen for Alport Syndrome patients and families.  — Sharon


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