Heather Von St James

Patient Leader

I am a 13+ year survivor of Malignant Pleural Mesothelioma. I was diagnosed just 3 1/2 months after the birth of my baby girl and told I had only 15 months to live. I sought out the world's leading specialist in the disease and am proud to outlive my best case prognosis. While going through treatment, I noticed a distinct lack of awareness and knowledge about mesothelioma and even fewer stories of hope. I started sharing my story by blogging and by talking with news outlets about mesothelioma. I started speaking at fundraisers and conferences all over the country to help raise money for research. My passion for advocating for others is what fuels my fire to lobby for a ban on asbestos and to raise money to find a cure for mesothelioma. I will not stop until there is a cure, and asbestos use is banned in the U.S. I am honored to represent the mesothelioma community and so appreciate your endorsement.


Roseville, MN


Advocating for Another Best in Show: Community Patient Leader Hero


Patient Leader Hero

I’m nominating Heather for this award because she's a courageous survivor who does amazing things for the mesothelioma community. Whether she’s traveling to attend events, volunteering for the Meso Foundation or ADAO, or hosting her annual Lung Leavin’ Day charity event, Heather is always doing something for others. I’m glad to know her!  — Gino

She is fighting for all mesothelioma patients  — Mati

National advocacy, spirit of a warrior.  — Adrienne

Heather Von St James

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