Patient Leader

My name is Gabbe, I’m 18 years old, and I have severe Gastroparesis, mild POTS, Long QT Syndrome Type 1, and Ehlers-Danlos Syndrome (type unspecified). I have volunteered at the Ronald McDonald house, obtained a declaration from the mayor stating that May is Ehlers-Dablos Syndrome Awareness Month in the city of Springfield. I work hard to be transparent and spread awareness on many social media platforms, as well as in real life.


Springfield, MO


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