As a parent/patient advocate, I raise awareness about eosinophilic-associated diseases and food allergies. When my seven-year-old son was diagnosed with Eosinophilic Esophagitis (EOE), I wanted to help others. I organized conferences, testified at the Virginia General Assembly, and met with members of Congress. I successfully petitioned for National Eosinophil Awareness Week state proclamations, helped get a restaurant food-preparation bill enacted, and co-founded online support groups for families and single parents. As a recent gubernatorial appointee, former elected school board trustee, speaker, and author of books and articles in The Mighty, I find such joy by serving as an advocate.
Dawn does so much to help her son Joshua. She writes about her journey of what they go through and all that she does to help him. They have met with the Gov. of Virginia, where they live, to help get legislation passed. She is a true role model for all that know her - she stays positive, proactive and wants to help people with similar issues. — Andrea
I’m a Patient Leader