Char - Chronically Hopeful

Patient Leader

Blogger and ME/cfs Advocate. Housebound with Severe Myalgic Encephalomyelitis (also called Chronic Fatigue Syndrome) since 2015. I am passionate about raising awareness of chronic illness, especially M.E, since there is still so much stigma and misinformation attached to it. My goal is to support and encourage the community and equip them to share their stories and raise awareness themselves. This is done through publishing their stories online, and creating informative posts as well as impactful graphics which they can share. I also manage various public and closed support groups on Facebook for people with ME and their carers and run the ME Awareness Pictures accounts where patients can find a large collection of shareable content for advocacy. We are currently translating graphics into other languages to help patients raise awareness in their own language. My hope is that people with ME will know they are supported, understood and not alone on this journey and to make sure that they have a platform where they are given a voice.


Keswick, ENG


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Char - Chronically Hopeful

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